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Aaliyah

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Photoshare_1__max50

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Posted over 5 years ago

 

Hello I would like to introduce my daughter Aaliyah Madison Watson. Aaliyah was born in 2004 with an extremely rare genetic condition. It is called Uro Rectal Septum Malformation Sequince with Cloaca. This condition is basically that all of the vital organs (stomach, liver, kidney, lungs, heart, bladder, bowels, appendix, etc.. did not fully grow/develop in utero or do not exist at all. She also has only one kidney and it has hydronaphrosis. Aaliyah had her first surgery when she was 8 hours old and since then she has had 21 more. Her 20th was January 13th and lasted 15 hours. Her 22nd surgery is scheduled for this Thursday March 19th. Aaliyah was given a 20% chance of survival at birth. Since then she has absolutely flourished and defied the odds. To look at her, one would never realize the extremly difficult life that she has lived or the difficult road that she has lying ahead of her. I have no doubt that Aaliyah will survive and will live an extremely vibrant life. FINGERS CROSSED. We have spent many, many nights and days crying, wishing and asking why. While we will never find this answer, we will continue to love, hope and pray for our child.


The really hard thing about this condition is it is so rare that there are no groups or foundations out there to help. iF she had cancer, MS, or CF we could get money, aid and assistance with her. Consiquently we have been brought close to financial ruin. But, through some kind hearted souls, Blue KNights Dayton Oh Chapter, Butler County CSA, Edgewood Teachers Association, Butler Tech FFA Edgewood Chapter, Butler County Horsemens Association, Bikers 4 Kids Association and several FOP Lodges through out the nation ((Except my member/home lodge)) we have recieved donations, courage and love which has gone a long way in helping us through.

Saint_micahel_images_max50

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Rate This | Posted over 5 years ago

 

From this minute forward, your little AAliyah will be in my prayers, Corey. I see she's scheduled for another surgery tomorrow ... praying here. 


God Bless and watch over AAliyah, and all of you


car  


I shall pass through this world but once. Any good therefore that I can do or any kindness that I can show to any human being, let me do it now. Let me not defer or neglect it. For I shall not pass this way again. Unknown

Quickley-b240_max50

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Rate This | Posted over 5 years ago

 

Cory you and your family will be in my prayers. I can not imagine what you or little Aaliyah are going through.


"The hottest places in hell are reserved for those who, in times of moral crisis, do nothing." Dante

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Rate This | Posted over 5 years ago

 

You, your daughter and your family will be in my prayers. She is a fighter and won't give up, you can count on that.


Broncos Nation

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Rate This | Posted over 5 years ago

 

I just heard from my wife. Aaliyah's new bladder still hasn't completely heeled from it's creation in January. So, she will have to keep the tube in a little longer. Her Doctor is recommending that we check again in 4 weeks instead of 2. While it is unusual to go this long, it is not uncommon, especially for the type of creation that was done and the placement of the new bladder.


Thank you all for your prayers.

Sunset_max50

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Rate This | Posted over 5 years ago

 

God bless Aaliyah. She is in my prayers.

Quickley-b240_max50

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Rate This | Posted over 5 years ago

 

Please keep us up to date on this Corey, you all continue to be in my prayers.


"The hottest places in hell are reserved for those who, in times of moral crisis, do nothing." Dante

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Rate This | Posted over 5 years ago

 

Praying here, Corey.


God Bless your little Aaliyah, and all of you.


car


I shall pass through this world but once. Any good therefore that I can do or any kindness that I can show to any human being, let me do it now. Let me not defer or neglect it. For I shall not pass this way again. Unknown