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hi

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Posted over 5 years ago

 

my niece is 5 she has a mermer on her heart i feel so sorry for her she is still so little

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I WILL KEEP YOUR NIECE IN MY PRAYER'S , IT IS FOR THIS REASON THAT I STARTED THIS GROUP THERE IS NO STRONGER MEDICINE THAN PRAYER , NO MATTER WHO OR WHAT YOU ARE. PULLING TOGETHER IN PRAYER CAN FIX ALL THINGS


JIMMY

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I couldn't agree more Jimmy.  My son has NF1 and thankfully it has been very mild.  My wife and I pray everyday that he will be able to maintain a normal life and will not suffer from this senseless disease.  Thank you for reading and most of all your prayers.  STAY SAFE

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Encouraging each other and praying is the best we can do. I have five children, two of which have psychological and physical issues. Three of them are on nebulizers at the moment four times a day. You always hate seeing your child suffer and know that there is nothing you can do to help them save hold them.


L'Chaim ve Shalom

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Banks72 says ...



I couldn't agree more Jimmy.  My son has NF1 and thankfully it has been very mild.  My wife and I pray everyday that he will be able to maintain a normal life and will not suffer from this senseless disease.  Thank you for reading and most of all your prayers.  STAY SAFE



What is NF1, bro? That is a new one on me.


L'Chaim ve Shalom

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One of our Captains and a good friend of mine, has a 5 y/o girl with a rare disorder called  Phelen-McDermid Syndrome or 22q13 Deletion Syndrome.  There are only 500 known cases worldwide.  It is a rare genetic anomaly caused by the absence of genes at the tip of the long-arm of the 22nd chromosome.  You really don't know how precious life and just good general health are unless you have or know someone who has a child like this.  She's a fighter though, she recently had to be put into a coma for 3 days to relieve seizure activity deep within her brain.  Her parents and her babysitter are real soldiers because she requires constant 24 hour supervision.  My heart goes out to them everytime I visit.  This is a cool group and I was honored to have been invited.  Thank you all for what you do and the support that you give.  It's great to just give in general, but when you know who you're giving to and can see the difference that it makes, that really touches you.  Take care everyone and STAY SAFE !!

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Wow I just joined this group and it is awesome to see you all praying together  for the little loved ones.


I also have 5 children, and my first two children were born with both psychological and physical issues. The Drs. said that neither of them would live past their first birthday. But with Christ all things are possible, and today they are strong teen-agers. My first born son turned 14 this 1st day of March. And my first born daughter is 13. Yes there are still many mountains for us to climb, but again with "Christ all things are possible"


Friends be strong in your prayers and in your faith with Christ and He our Heavenly Father will lead us home into His arms.


STAY SAFE and may GOD Bless

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I agree...this is an awesome site. I have a 2 1/2 year old grand-daughter, Shantel, who was born with a cleft lip and palate. She is missing part of her corpus colosom, which controls the right side/left side of your brain. She has had several surgeries to date, including open heart surgery to repair a hole in her heart. Shantel is my absolute hero...she has handled each surgery with a small tear, and then a big smile!!!! She is the light of my life, and she knows she has me wrapped around her finger. She has recently begun to make sounds, including a beautiful laugh that is music to my ears and a giggle that's contagious. At this point, it's unsure if she will ever walk or talk, but she has already exceeded expectations several Doctors have set for her. She is a miracle to me, and has shown me what true courage really means. Those of you that believe in the Power of Prayer, please include Shantel in yours. Thanks!!!!!

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tased says ...



Wow I just joined this group and it is awesome to see you all praying together  for the little loved ones.




 

I agree 100%!!! Its an honor to be a part of this wonderful group.



Jess

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Will keep all of your little ones in my prayers...


 


Be safe and god bless yall...


 


Steve


Deputy Steven Dohl
El Paso County Constables Office
Precinct One
424 Executive Center Drive
STE 100
El Paso, Texas 79902

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I wish the medical community could somehow get to the root of the causes for so many of these illnesses that plague these precious babies in their dawn of life. Unfortunately, technology has not gotten that far, yet,  so God bless these children and I pray they live a long happy life! A friend of mine lost her 9 year old sister to the battle with Sickle Cell. Her body rejected bone the marrow I donated, a few days after, what we thought was working, and took a down hill spiral from there. Nothing is harder that seeing a child lying inside a casket and I never want to experience that again, nor do I wish that on anyone else, and God be with the ones who do have to go through that. Sadly, theses illnesses are very real.

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I agree with Athompson... there are more and more cases of bizarre illnesses/disorders being seen in infants than ever before. My son, who has had open heart surgery and stomach surgery (see my other post for an in depth detail on this) was the 5th baby boy that had to have the combination of the two surgeries that week. Me and my wife started to think that it was something that we had done during the pregnancy but then hearing that figure astounded us and still makes us wonder what could have caused it. Once technology catches up to the rate that these diseases and disorders are spreading we may be able to do something about it... but I don't envision that any time soon.


Deputy Steven Dohl
El Paso County Constables Office
Precinct One
424 Executive Center Drive
STE 100
El Paso, Texas 79902

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 Hi,


I'm Lorrie and I just joined the group from a friend invite. I don't have children- except 4 legged ones that bark or meow. I have however lost a parent so I can associate with the pain of loss and frustration when nothing can be done to help a loved one. By hook or crook I have wound up working with critters called cotton rats, which actually have organ systems very much like premature infants and small children. So, I can tell you that there are people out there busting their chops to figure out how tons of diseases work so the processes can be reversed or stopped, and to make vaccines to help protect children various bug and such. Can't really get into specifics on current projects or I would lose my job, but my current project has been in the works for approximately 4-5 years now and you teetered on the verge of getting a problem unraveled and the chair gets pulled out from under you, scientifically speaking. Take heart, because all that does is irritate the project workers enough that they resolve not to give up until there is success. You know you can get something to work but you have to work through one heck of a maze to get it done.


I have done this long enough now that there have been many a day that I have either locked myself in my office or waited until I was in my vechicle or at home and cried my eyes out from frustration because you know the answer is there but you just can't get your hands on it.


So, don't give up and yes prayer really does help, and it is truely amazing how tough and resiliant children are when they are sick. My personal opinion is there are many adults out in the world that could learn great lessons from these children to make themselves better humans.


If your curious at to what a cotton rat is, look up gumby63857 and look in either my profile album or the pets and such album and there is a little brown rat with very big, sharp teeth in a picture. That my friends is a cotton rat and they have already helped create and test vaccines to keep newborn children from getting respiratory viruses and there is a ton of other good things in the works.

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My heart goes out to all these little ones whose stories are on this page.


All will be in my prayers.


God Bless and watch over them and their families


car


I shall pass through this world but once. Any good therefore that I can do or any kindness that I can show to any human being, let me do it now. Let me not defer or neglect it. For I shall not pass this way again. Unknown

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 I'm a huge believer is prayer. I've been the recipient of prayers and miracles and I've been blessed to pray for those who've felt the power of prayer.  Keep your spirits strong and know that the Love of God is bigger than anything we can imagine and He has all things worked out.  Still, I know it's tough and I will definitely pray that your load will feel lighter. Blessings, Annie

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GOD bless 'em all............................................


It is what it is.............and.........these things too shall pass.